Happy 12th birthday to my little, big man Nathan today! Today we celebrate the gift of him. We have been so blessed by him in our lives. He is sweet, funny, kind, caring and oh so cute. We look forward to sharing more fun photos from our trip soon, but today, we are busy celebrating! We woke up to this amazing sign in our front yard. Take a minute to check this company out. The owner Whitney, generously put this up for him today. Thank you for all who have commented, he has loved hearing from everyone!
Nathan will be turning 12 on Friday. If you have a moment, can I ask that you leave some birthday wishes here for him? I will read each one to him. He really wanted a party this year, but we are struggling with some mood issues and just wanted to keep it low key, but thought he would get a kick out of people wishing him a Happy Birthday!! And maybe even mention where you live. It is fun to see where everyone is ☺
We spent the morning packing up from our Disney World vacation and headed down to Disney Springs. We shopped and of course, Nathan got another light saber. He is coming home with three new additions to his collection.
We went to catch the Magical Express to the hotel and Nathan lost it trying to get on the bus. The driver asked if we would rather have our own transportation to the hotel. Of course we felt that this would be a better option for all involved. They called us a taxi and we made our way back to the Orlando airport. Immediately, he fell asleep in the car. These long, hot days are taking so much out of him. We have arrived at the hotel and are going to take it super easy tonight as tomorrow will be a very big and exciting day.
A very special thing to note today is that it is Nathan’s big sister’s 14th birthday!! She has been so amazing and such a tremendous help to us on this trip. She is able to reach him when at times we are not. She is kind, loving, thoughtful, sweet, caring, compassionate and I could go on and on. I hop she realizes just how much I admire and look up to her. She is one in a million and we love her so very much.
Please continue to pray for us. Nathan needs to have a fun trip, we all need some fun right now. You won’t hear from us for a week, but will update everyone after we get back with lots of photos and a recap of all our adventures.
Well, all the prayers sure helped today. This was the first morning that Nathan did not completely loose it during breakfast. We had a nice meal and enjoyed each other’s company.
Today, we decided to go to Magic Kingdom. I will say, it was very busy for a Wednesday and I was a little nervous when we arrived. We first headed to Pirates of the Caribbean. Nathan had a great time. Then we headed to Thunder Mountain Railroad, which has always been one of our families favorites. Madison and Nathan rode together and they let us ride it back to back. It was SO good to hear him laugh and see him smile. We then did The Haunted Mansion. After that, we had a little treat, then headed back to the hotel to rest. It was a pleasant day and we are getting ready to go out to dinner.
From the bottom of our hearts, thank you for all the thoughts and prayers, they obviously helped and we are hoping for more happy days.
My heart hurts tonight. We have waited for this trip for months. We have prepped Nathan and prepared as best we could. However, we have realized that this disease has stolen so much from him. It hasn’t even been a year since he was diagnosed, but it is like we are a year too late for this trip to mean something. I am hoping that once we get to the Make-A-Wish portion, it will change. The crowded places are just too much for him to handle, he can’t cope and he just melts down. We have had a hard time being among large groups of people. Guess what, you can’t quite avoid that here. We have been able to ride 2 rides since we arrived because we just can’t stay in one place.
We are taking it all at his pace and catering to his needs, but it was been hard to watch. Madison had been amazing on this trip. She is such a fantastic big sister, who very much wants her brother to have the trip of a lifetime and doing anything in her power to help. She has been a tremendous help to us.
We have had some good moments and met a few really nice people who have taken the time to understand Nathan’s story. When you take the time to understand people are kind and compassionate. Unfortunately, we aren’t able to talk with everyone we come in contact with, so I am not sure what they are left to think. I hate the idea that someone might think poorly of Nathan based on his behavior in a bad moment, but that is the reality.
We go to bed every night praying that the next day will be just a little better. I am surprised by the amount of patience we have all had. We have all done really well at not letting it get to us. We are clinging to the little moments of good. The sweet smiles, the hugs and kisses and the little giggles carry us through.
Please continue to pray for peace for Nathan. We want this trip to be good for him. Pray for all of us to have some amazing family time that we will remember forever.