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Our 16 year old son has been diagnosed with Juvenille Batten disease. This is a very rare neurodegenerative disorder that is fatal. This is our journey.

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Published by So That He Can See

I am a wife of 22 years to an amazing man. We have a beautiful 20 year old daughter Madison and an 18 year old son Nathan who has Juvenile Batten Disease. View all posts by So That He Can See

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