Nathan's Batten Battle – Our 14 year old son has been diagnosed with Juvenille Batten disease. This is a very rare neurodegenerative disorder that is fatal. This is our journey.

April 2, 2018April 2, 2018So That He Can See11 Comments

Things just got a lot more real

February 28, 2018So That He Can See8 Comments

The truth

February 8, 2018February 8, 2018So That He Can SeeLeave a Comment

RARE Disease Day

January 5, 2018January 5, 2018So That He Can See3 Comments

Life around here

July 11, 2017So That He Can See1 Comment

Annual Batten Conference

June 10, 2017June 10, 2017So That He Can See4 Comments

Two years

May 22, 2017So That He Can See4 Comments

Much needed help