Nathan's Batten Battle – Our 14 year old son has been diagnosed with Juvenille Batten disease. This is a very rare neurodegenerative disorder that is fatal. This is our journey.

August 8, 2018So That He Can See2 Comments

High School (sigh)

July 2, 2018July 2, 2018So That He Can See5 Comments

Update

May 28, 2018May 28, 2018So That He Can See4 Comments

Hallucinations

April 2, 2018April 2, 2018So That He Can See11 Comments

Things just got a lot more real

February 28, 2018So That He Can See8 Comments

The truth

February 8, 2018February 8, 2018So That He Can SeeLeave a Comment

RARE Disease Day

January 5, 2018January 5, 2018So That He Can See3 Comments

Life around here