Our 16 year old son has been diagnosed with Juvenille Batten disease. This is a very rare neurodegenerative disorder that is fatal. This is our journey.
Hello there! I have read and been touched by your blog and your families story! My sister sent to me and thought I should send my photos. I have had the blessing to travel and see beautiful sights. I always felt it was my obligation to capture as much as possible to share with people who might never get the chance. I would love to share with little Nathan. Here is my website http://www.peopleofbeauty.com. Love to you all.
Robin Flanagan
I am very sorry to hear about Nathan’s health and I wish there was something I could do to brighten his day. i remember this story very well and I wondered if you would accept a book on the cayman islands for Nathan he would see a bit about the caribbean, ocean, and the creatures in it. If this is acceptable i will send the book to you very soon. you may contact me on by phone 1-345-916-3143 or by email lisa.prendergast@gov.ky
I am so sorry I have not responded sooner as somehow I misse this comment. He would love a book about the Carribean. He has been on a cruise there and loved it. Please let me know if you need out mailing address.
Good morning, I’ve had the opportunity to send various postcards from our trips. I hope Nathan has had an opportunity to see them and has enjoyed them. I’m sending one from Ft. Worth Texas and hope he enjoys.
Hello there! I have read and been touched by your blog and your families story! My sister sent to me and thought I should send my photos. I have had the blessing to travel and see beautiful sights. I always felt it was my obligation to capture as much as possible to share with people who might never get the chance. I would love to share with little Nathan. Here is my website http://www.peopleofbeauty.com. Love to you all.
Robin Flanagan
Thank you for sharing your beautiful website with us. You are very talented and given us rare glimpses of things we would never have seen. Thank you!!
My daughter is Blind and autistic too, she is 9 years old
Can we pray for your daughter also?
We just offered to pray for Nathan in Colorado.
Email us and see comments we sent to Nathan’s family.
Dear Hiltman Family,
I am very sorry to hear about Nathan’s health and I wish there was something I could do to brighten his day. i remember this story very well and I wondered if you would accept a book on the cayman islands for Nathan he would see a bit about the caribbean, ocean, and the creatures in it. If this is acceptable i will send the book to you very soon. you may contact me on by phone 1-345-916-3143 or by email lisa.prendergast@gov.ky
Lisa-
I am so sorry I have not responded sooner as somehow I misse this comment. He would love a book about the Carribean. He has been on a cruise there and loved it. Please let me know if you need out mailing address.
Thank you so much!!
Stacey
Good morning, I’ve had the opportunity to send various postcards from our trips. I hope Nathan has had an opportunity to see them and has enjoyed them. I’m sending one from Ft. Worth Texas and hope he enjoys.
The Nelson Family
Ontario, Canada
How is he now?
He has his good days and bad days. He is getting ready to go on his Make-A-Wish