Moving on….

The other day I decided it was time to pack up all of the postcards and other trinkets that Nathan had received over the last year.  Honestly, they have stopped coming and I really needed my dining room table back for Christmas:).  But in reality, I did not know what to do with them anymore.  He can’t really see the pictures and I was not sure what to do other than put them in storage for a memory down the road.  One day we can pull the tubs out and look back on the journey we went on, literally around the world from our own house.  I have to say it was a bittersweet moment for me.  I was glad to do it alone.  I was able to go back and look through all the postcards, the trinkets and the words of encouragement.  There were so many.  Literally, thousands of postcards made their way through my front door.  Letters of hope and words that made me cry. Stories that made our situation seem so small and others that made me realize I can make it one more day. It still makes me smile to think of all that everyone did for us.  But there was a sadness in packing it up too.  I realized that Nathan won’t look at these again.  He won’t ask the questions that he once did about the places he saw.  It marked one more what seems like last moments for us.  We struggle to hang on to every little piece of the here and now with him so that we do not lose focus of what we have.  But I would be lying if I said we don’t think about the future, A LOT.  We do not know what the future holds and unfortunately our imaginations get the better of us at times.  Thankfully, Jay and I have each other to remind ourselves at times not to get ahead of ourselves.

I wanted to take a moment to thank each and every one of you who sent a memory to us.  They have been cherished.  It gave our family an opportunity to sit and look at the world in a way that we may have never been able to do.  

Nathan came home from school for Christmas break with a new tool.  He is now equipped with a cane.  He was so proud to walk to the car and show me how he uses it.  I took him to the store and it was the first time in a year where he was not holding on for dear life to walk.  He held my hand, but used his cane to get around.  He had a sense of Independence that I have not seen in a long time.  It was quite wonderful. He did proceed to tell everyone that he came in contact with that “This is my cane, it is not a weapon and it is not a toy, I use it because it helps me”.  It was sweet.  He has been doing well in school and the school has been absolutely wonderful in accommodating his needs.  He truly is a unique person with special needs and they have stepped up to the plate and really come through for Nathan and for us.  We are working with Social Security and Disability now to see what he is eligible for and that has been quite interesting.  That will be a long road, but one worth pursuing.

We have received the first of Nathan’s genetic testing and I am thrilled to say that it all came back normal.  We have appointments in January to meet with a Neurologist. We are nervous wrecks about all of this, but trust that God has a plan.  We know that we are in good hands.  Jay and I are Nathan’s biggest supporters and will always stand by him and fight for whatever he needs.  Our prayer is that his road is just a little easier than it seems right now.  We pray that his life is full and that he is happy.  As long as we have that, what more could we ask for.

From our family to yours, we wish you the Merriest Christmas and Happy 2014



2 thoughts on “Moving on….

  1. Merry Christmas to your entire family. I am one of your biggest fans, and am in love with your family… I am supporting you as you are supporting your son and daughter. DONT forget to ask for help, an ear or anything you need…:)

    1. Thank you very much! It is hard to ask for help but we try when we can.

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