Please pray for our family. We are really having a hard time right now. Nathan will be going in next Tuesday for a skin biopsy. They will grow it for 3-4 weeks and then it will take another 3 months for results. They seem to have a clue based on his last results, but still not a clear answer. If it turns out to be what they are looking at, it does not mean good news, it just means an answer.
Nathan has been having some behavioral challenges we believe due to a medication change. We hope that regulates very soon as it is causing some potentially serious issues.
I just plead with you for prayers for our little man and our whole family.
Thank you,
Stacey
Our 16 year old son has been diagnosed with Juvenille Batten disease. This is a very rare neurodegenerative disorder that is fatal. This is our journey.
Nathan's Batten Battle 
Always Stacey. Hugs for everyone.