News story

9 News (NBC) came out to the house yesterday to do a follow up story on Nathan and to help bring awareness to Batten Disease.  It was the same team that came out three years ago.  They were so kind and warm to our family.  She hopes to have it air next week sometime.  I will keep everyone posted as to when it airs and post the link after.

Thank you all for the love and support.


1 thought on “News story

  1. Frank and Diana LYONS November 11, 2015 — 10:26 PM

    Let all things that make sound pray for a cure for Batten Disease.

    Date: Wed, 11 Nov 2015 23:45:30 +0000

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