News Link

Attached is the link to the news story that aired today.  Thank you for telling our story

Boy slowly going blind finally has a tragic diagnosis

(Sent from 9NEWS)

2 thoughts on “News Link

  1. Hello,
    I just wanted to let you know my young cousin lives in West Harrison Indiana and she was diagnosed with Battens disease as well. She was a beautiful fun loving 7 year old and it’s nit fair that her life was tu4ned upside down. She is now 15 and a sophmore in highschool. She is in the marching band,choir and a member of the archery team. My Aunt and Uncle ( her parents) have traveled the world to get answers on what the disease is and how rare it is. If you have any questions olease let me know and I could put you in touch with them.
    May god bless your little man.

    1. Thank you for reaching out. I would love their information. We are always looking to connect with other families. Happy Thanksgiving

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