Our 16 year old son has been diagnosed with Juvenille Batten disease. This is a very rare neurodegenerative disorder that is fatal. This is our journey.
Nathan and Madison both have had a wonderful day! We are so thrilled with the progress we have made with Nathan. This is truly a very Merry Christmas! We wish you all a wonderful new year.
How very handsome he is. Love and prayers. I share your fb posts, and just wanted you to know.
Thank you so much, we appreciate it.