Today, Nathan participated in his 5th grade field day. I remember doing this as a kid and it was a sign that summer was right around the corner. We had rain almost the entire month of May, so I was happy that today was a beautiful day for him to be outside and have so much fun with his classmates. I can’t believe that in less than a week we will have a 6th grader.
Madison finished school yesterday and will be going into 8th grade. She finished the year on the Honor Roll and we could not be more proud of her and all her accomplishments. These are the type of accomplishments that we sometimes take for granted. She is so smart and able to do so much independently that we need to be more mindful to check in with her to make sure she is okay.
Today was a happy reminder that Nathan is loved by his teachers and his peers. I can’t begin to describe the worry that I have felt over the years wondering if when he is not with me if people were kind to him or paid attention to him. I have wondered if he really had friends at school, I have wondered how a whole year can go by without an invitation to a single birthday party. And every so often Nathan will question it, but mostly, he is happy. This school year was the most pleasant year Nathan has had so far and for that I am a happy Mama!
We go back to Children’s Hospital on June 10th to get the final results of the DNA testing that they did. We should have a definitive answer at that time. The Doctors have requested that just Jay and I attend this meeting. Words do not adequately describe the pit in my stomach. I literally ache over the idea of what we might hear. But I pray daily for help to get through whatever we may face. I ask that you pray for us as well. I will update everyone as soon as we are ready to let everyone know.
As always, thank you for the love and kindness you have shown to our family. It truly means the world to me especially. The other day we received a post card and it was such a sweet reminder that people have not forgotten about our son.
Stacey
Nathan's Batten Battle 
Nathan is an amazing little boy…up for anything and enjoying life. I am very proud of him. And Madison…you are a bright shining star in your family. The HONOR ROLL!!! Look at you. You go girl. Very proud of you.
years ago I met a wonderful nurse, I was waiting for the results of my 8yr old daughters brain scans, she was having uncontrolled seizures and was in a coma at that time…I was wanting the “answers” and I think I told the nurse how soon would I have the “answers” she turned to me ….held my hand and said ” oh honey, its not about the “answers, cause as soon as you get the “answers” your just going to have more questions!.. I was stunned it made so much sense, she continued on…. its about a
PROCESS…..that is the key….I leaned that very day….to pay more attention to the “process” how I took care of myself during the “waiting” for the answers and she was right, they were only followed by more questions… My daughter came out of the coma, and is now married and has children….I am 72 yrs old and I am still so very grateful for that wise
nurse….She saved me a lot of grief, and still today I keep my eyes on the process’s in my life…cause I have found its really about how I go from the question’s to the answer’s usually followed by more question’s again…..Blessings…keeping your family in my prayers
Stacey, thank you for the pictures of Nathan at field day.Looks like he had a blast and you can rest easy that he does have friends when he is not with you!! I have said before that God placed Nathan in that school knowing he would be nurtured and treated with respect and these images only confirm that. Glad he had such a great day, field day is fun for everyone! Love to all of you!!
Sorry I forgot to sign my name on my message. Love you all, Aunt Sue and Uncle Julius