Our 16 year old son has been diagnosed with Juvenille Batten disease. This is a very rare neurodegenerative disorder that is fatal. This is our journey.
Nathan had his first music therapy session today. He loves music, so this was right up his alley. He really enjoyed the “tangerine” and strumming the guitar. He even made up a few songs. It was really sweet to watch.
This is terrific! I love tangerines too! Can’t wait to see him in action. Love you each. Hugs and kisses and MUSIC!!!!