Ok, deep breath. I have been putting off writing this for quite some time, however have been encouraged by an amazing group of friends that it is time to get the word out.
As most of you know with the progression of Batten Disease, Nathan will most likely be confined to a wheelchair. Our home and vehicle is not modified in any way to accommodate his future needs. The future is very unknown, however there unfortunately are things that we can start planning for now.
We are holding a silent auction here in Denver on May 6th. It will also be available online for those who live outside the area or are unable to attend.
More details to follow, however right now we are looking for items to be donated that we could auction off. If you have or know of anyone who has any items they would be willing to donate, I ask that you email Nathansbattenbattle@gmail.com
Thank you all for your love and support of our family. It means the world to us.